Every Friday I do an update on my blog: Tri, Tri Again! just for your perusal. I'll copy it here. Have a great week!
Friday's Update Spectacular!
Me: I'm soooo sensitive to ambient temperature! I wonder what people did a long time ago before air conditioning when they broke their necks. Oh, that's right, they died!
Nic: Yeah, life was much simpler back then.
Me: Sigh. Things are quite complicated in this day and age.
In the news:
Drugs-down to 25mg baclofen a day, and that does it for prescriptions! I was on 7+ types of meds so this is fantastic. Baclofen is an anti-spasmodic that I'm slowly weaning down. Spasms, by true definition, are created by disruptions in the spinal cord. Related to the hypertonicity of my leg, it happens when the muscle tries to talk to the brain via the spinal cord, and the message is all garbled, making the muscle twitch or contract in various ways. There's a possibility I'll need it long-term, but it's really a small possibility, and way more likely I never needed it in the first place! Baclofen just never seemed to work for me. It doesn't cause any side effects really, I just don't want to be on meds if I don't need them. My spasms are considerably better; now they're tiny and just a bit annoying every once in a while.
Spasms are hard for me to talk about because they can be debilitating, they can progressively get worse, and many people have them and they never ever ever go away. I'm just hopeful mine will since I'm so highly functioning. But I'm getting sad and fearful just typing about it.
Luckily I haven't had ANY pain since the first few weeks of hospitalization, and I haven't needed pain meds at all this year!
Spasms are hard for me to talk about because they can be debilitating, they can progressively get worse, and many people have them and they never ever ever go away. I'm just hopeful mine will since I'm so highly functioning. But I'm getting sad and fearful just typing about it.
Luckily I haven't had ANY pain since the first few weeks of hospitalization, and I haven't needed pain meds at all this year!
Work-well...this week? The only thing holding me up is honestly redundant superfluous paperwork. Incredibly frustrating. I'm losing hundreds of dollars a day because of it.
Taxes-done! almost ;)
Bike court-I was all prepared to defend myself, it was a no-brainer really and after reading the laws it was very clear to me that I was in no way in the wrong. THEN I happened to know a lawyer who was there for other cases, who is also a runner/triathlete, who discussed my case with the judge and had my tickets cleared! Woohoo! Not that I wouldn't have won it on my own but it was a big weight off my shoulders. Also there was Ben Broussard, who's family, if you remember, took the video of Nic and me crossing the finish line. Completely ran into him by chance. I love this place!
This is the video, how awesome Ben & Family! Whoa, Really loud!
Driving-soon I hope!
Therapy-FaBuLoUs!! Finally got to try the e-stim machine that would help my hams overcome my quads, but it didn't work very well for me after all. MAINLY because I've improved so much over the last couple of weeks that it was obsolete! It's not perfect, but my quads are really starting to calm down. Things are looking totally up! No One Knows, I may never get better past this point, but I'm expected to make a 95%+ recovery. I say 100%.
My hand is also getting better! I can shake hands again now - this is big! - and my strength and function is returning. SLOW but definite progress. I get frustrated but Simonne my OT can always show me where I've made progress even if I can't see it myself.
FestiVELO-Laffy's 1st Bike Festival was last Sunday, and a huge success! It's "Bike To Work" week this week. I'm incredibly hopeful for the cycling future here!
Lastly, I'm part of another blog if you haven't checked it out already, with two other women that battle life-threatening lifestyle changes. We're all the same age, all are mothers, and all stay healthy despite our challenges! Here's the link:
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